Research and Hope

Research makes a world of difference! Research is a reason to hope, and daily there are advances in cancer research.

Patients, survivors and caregivers can speak into the research process, making it better. There is need for people who have cancer experience to participate as research advocates.

I’m glad to finally have my computer back and running, the corrupted hard drive replaced. Not having a computer made life and advocacy much more challenging. Even without it, I’ve been busy with a lot of lung cancer activities, including ongoing research advocacy with the Canadian Cancer Trials Group and the International Lung Cancer Foundation.

If you are a lung cancer survivor advocate who is interested in learning and growing as a research advocate, please consider applying to the (IASLC) International Association for the Study of Lung Cancer’s “STARS” program, in which I participated as a mentor for six months last year. Such a great learning opportunity! You’ll need a reference and to set aside a few hours to apply. (The AACR Scientist <–> Survivor Program is also excellent, and open to advocates for all cancers.)

I spoke as part of a team to a group of patient advisors at The Ottawa Hospital in January, with the goal of working together to improve cancer clinical trials. They were engaged and inspiring! We are walking in new territory and innovating new pathways. I’m hopeful.

Our monthly lung cancer hope outreach tables at the Cancer Centre continue with good coordinating work from Andrea Redway, with support from The Ottawa Hospital, Lung Cancer Canada and the IASLC. It is clear that the information and conversations make a real difference for survivors who stop by, many are newly diagnosed or in process of being diagnosed, which is one of the most challenging parts of the lung cancer journey. We are privileged to invite them into community, share information and stories, and (perhaps most importantly) listen. It is clear by their facial expressions and body language that they tend to leave much more uplifted and encouraged. We have an amazing team of compassionate and skilled people. From time to time, we talk about the emotional toll it takes on our team. Most agree that it leaves us feeling a little emotional fatigue by the end of the day, but after a bit of rest we are restored. Overall, this work brings so much joy and fulfilment to team members. We get along well and enjoy each others’ company. It’s really good to work together as a team. I’m very grateful for these people and other teammates who invest a day each month.

There are many amazing people doing good work for people affected by lung cancer and other cancers. What a privilege to get to know some of them, and sometimes connect them with each other! It brings me joy to connect people to form strategic partnerships.

It was great to meet Amy Desjardins, Director of the Canadian Cancer Society, Ottawa Region, in person in January, and to learn that their holiday fundraising appeal which used my story has raised over $280,000 for cancer research.

I’m part of several online lung cancer communities, which offer information, empathy and support. I’ve met many hundreds of people around the world through these groups, and it’s exciting to meet in person. When Kim told me that she was coming to Ottawa for the Family Day long week-end, I asked my kids how they felt about having her family over for dinner. They jokingly gave me the “Stranger Danger” talk! They are very supportive of my lung cancer work because we’ve talked about it and they understand how important lung cancer survivor community and advocacy are. They know that it’s up to us to support people and stand up for better outcomes for people with lung cancer. We were very happy to welcome Kim and her family into our home. It was great to spend time together.

I continue to connect with many people affected by lung cancer and spend hours each month listening, encouraging and seeking to inspire hope. It’s an honour. We have the choice to live in hope or fear, so why not choose hope?

Did I mention that my youngest turned 13 recently? That’s right, now all three are teens and life is wonderful! I can’t tell you how grateful I am to be alive and be here with them and for them. I cherish these precious moments, and hope for many more. I dedicate time and effort to advocacy with hope that this will help improve outcomes for others affected by lung cancer, today and in the days to come.

Fundraising continues!

The Super Bowl Challenge is over, but the fundraising continues! It’s not too late to give to support people affected by lung cancer! Please note Team Jill’s new Canadian page 2020 link: http://donate.ottawacancer.ca/goto/teamjill

Going to the Super Bowl is the cherry on top of the real prize which is really about raising money and challenging our communities to stand up for people affected by lung cancer. The Super Bowl Challenge is over but the fundraising is not!

I’m here, alive more than 6 years after diagnosis. The lung cancer is controlled by one pill each day. We’re not ready to call this a chronic disease like diabetes, but for people with a diagnosis like mine, the median survival is 6.8 years. Those 6 years mean a lot. My kids have gone from being 6, 10 and 12 at time of diagnosis, to now being all teenagers. What a privilege, what a gift to be here with them! These 6 years mean a LOT!

Research matters! Research means more people with lung cancer will live longer. It is imperative that research is ongoing, and also that everyone diagnosed with lung cancer in Canada gets access to the best treatments available. That means biomarker testing and faster approval of effective treatments. Clinical trials give people access to new effective treatments.

It’s a shame we weren’t able to raise more money and create more access to treatments. We are continuing to work on opening up pathways: it shouldn’t be so hard to give money for lung cancer research!

Team Jill’s Canadian page has been migrated to its brand new 2020 link! Since that’s ready, Team Jill will be fundraising more actively again until the Feb. 3 deadline!

Once we raise $5000USD, 90% of the total raised will go to Ottawa lung cancer clinical trials. The other 10% will go to Team Draft’s excellent lung cancer initiatives.

Chris Draft gives tremendous support and leadership to lung cancer survivors and advocates around the world. He has made a strategic difference here in Ottawa, connecting with Louise and the Evening of Hope Team, Elizabeth Dessureault and her family, Kayla and Jordan MacWilliam and their community, and many more. We are grateful for him and his wisdom and encouragement.

Team Jill:  https://charity.gofundme.com/o/en/campaign/2020-lung-cancer-survivors-super-bowl-challenge/jillhamer-wilson

OR: Team Jill’s 2020 Canadian page (for Canadian Income Tax receipts):  http://donate.ottawacancer.ca/goto/teamjill

Day Ten – Thanksgiving

12 Days of Giving to Lung Cancer Clinical Trials

HUGE THANK YOU to all who have given so far in our 12 Days of Giving to Lung Cancer Clinical Trials!!

THANK YOU for giving to lung cancer clinical trials!!! You are making a difference for people now and into the future! It takes a team to tackle lung cancer. Thank you #team!

Your gift will help people living with lung cancer experience longer and better survivorship, and it will contribute to the eradication of lung cancer. That means so much. Thank you.

Huge thank you to Team Draft and Chris Draft for your hard work putting on the Super Bowl Challenge, developing leaders and supporting people affected by lung cancer around the world. You make a real difference. Today marks eight years since Keasha Draft’s passing. Chris, you have put in far more work than we realize and you deserve far more appreciation than we show. THANK YOU.

Sunday the 29th is the last day to give to the Super Bowl Challenge, but we will continue to accept donations for clinical trials into January. I’ll be honest with you. I would LOVE to win the Super Bowl Challenge, earn a trip to Florida in the Winter, the experience of a lifetime and opportunity to share lung cancer’s story with that huge platform … but …

What really matters is that we pull together as a team to tackle lung cancer. What matters is that we rally together for better care for people affected by lung cancer. Clinical trials matter because they actually extend lives.

Anyone can get lung cancer. I am frequently contacted by people shocked and saddened by a diagnosis, whether their own or someone they love. Lung cancer affects almost everyone.

Research is changing the story & saving lives, so we need more research! I have a deep passion for driving change in this field and sadness that so far we have raised less than $1000.

It’s not too late to raise more money for lung cancer research!

It takes a #team to tackle lung cancer. Join us!

Would you please consider giving if you haven’t yet? Would you have family or friends who you might ask to give to this important cause? Please invite them. This is a good year end tax deductible investment. It could extend your own life or the life of someone you love.

It’s not too late to give to lung cancer clinical trials. Please give, #team!

Team Jill:  https://charity.gofundme.com/o/en/campaign/2020-lung-cancer-survivors-super-bowl-challenge/jillhamer-wilson

OR: Team Jill’s Canadian page (for Canadian Income Tax receipts): http://donate.ottawacancer.ca/goto/jill 

#12Days of giving to #lungcancer #clinicaltrials #Hope #Care #Team #Support #SilverLinings #Stories #Awareness #Early Detection #Treatment #Research #Survivorship #TeamDraft #ChrisDraft #ThankYou #lcsm

6 Geese a-laying – Research

12 Days of Giving to Lung Cancer Clinical Trials

What is the connection between geese and lung cancer research? Why did “research” immediately spring to mind for the Sixth Day of Giving to Lung Cancer Clinical Trials?

The connection is the goose that laid the golden eggs. That is research. It may not feel like it to some researchers working away in their lab, but it is true!

This is a fabulously exciting time in lung cancer research! New treatments are being approved and people are living longer and better. We are expanding the horizon of the possible.

LUNGevity put out a compelling video last month with stories from people directly affected by lung cancer clinical trials. The link is below. Please take three minutes to watch it. “In the last three years, the FDA has approved more lung cancer treatments than in the last three decades, thanks to clinical trial patients.” The survivor stories are gripping.

I’ve been to just a few of the many conferences where lung cancer research has been presented this year, and it is phenomenal! There is no rush quite like the realization that thousands of brilliant and dedicated people are working hard all over the world to find cures for people affected by cancer.

We are seeing success! The research is working! New treatments for lung cancer are being approved at record rate! People are living longer and better.

We’re not there yet.

Research keeps laying golden eggs. Let’s be generous in our support.

Research works. Research matters. People matter. We need more research.

If you were thinking about giving me a Christmas present this year, or making a tax-deductible end of year donation, please give to lung cancer research here. Thank you.

#ResearchMatters

Team Jill:  https://charity.gofundme.com/o/en/campaign/2020-lung-cancer-survivors-super-bowl-challenge/jillhamer-wilson

OR: Team Jill’s Canadian page (for Canadian Income Tax receipts): http://donate.ottawacancer.ca/goto/jill 

Click here to see the video It will open up to another page where you can click on the big picture to watch it. You can also see individual stories if you click on the smaller pictures below. It was an honour to be part of this project, because clinical trials matter. Thank you, Linda, Jack, LUNGevity and the whole team. You did a great job!

This image has an empty alt attribute; its file name is screen-shot-2019-11-30-at-4.21.51-pm.png
Click here to see the video

#12Days of giving to #lungcancer #clinicaltrials #Hope #Care #Team #Support #SilverLinings #Stories #Awareness #Early Detection #Treatment #Research #Survivorship #ThankYou

SiX Years!

To celebrate SiX years of lung cancer survivorship, we are fundraising for lung cancer research! This is such an important cause because anyone can get lung cancer, even active moms of young children.

Join Team Jill to celebrate survivorship!

Lung cancer is the deadliest cancer by far, yet in Canada it gets less than 0.1% of all cancer donations from individuals and businesses.

Join Team Jill to celebrate survivorship and change that statistic!

This year, Team Jill is entering the 2020 Lung Cancer Survivors Super Bowl Challenge, raising funds for lung cancer research. Please join in and celebrate survivorship by supporting Team Jill!

Support Team Jill by:

  • making a generous donation
  • asking friends and family to donate
  • inviting Jill to speak at your workplace, community group or living room gathering
  • asking your colleagues to donate to lung cancer research
  • holding a bake sale or other fundraiser
  • sharing on social media
  • brainstorming ideas and acting on one or more
  • talking with Jill about your ideas, and working on them together

Team Jill’s page:  https://charity.gofundme.com/o/en/campaign/2020-lung-cancer-survivors-super-bowl-challenge/jillhamer-wilson

Team Jill’s page for Canadian income tax receipts: http://donate.ottawacancer.ca/goto/jill

Support Team Jill now, because this special window is only open until December 29! We are entering the Super Bowl Challenge to raise funds for lung cancer research. This unique fundraiser gives lung cancer survivor-advocates the opportunity to compete against each other to raise funds for lung cancer awareness and cutting edge research. The top three fundraisers earn trips to Florida for the Super Bowl, Pro Bowl, and Taste of the NFL, but the real winner is the people (who may not have been diagnosed yet) who will benefit from the research.

People affected by lung cancer live with a sense of urgency! Lung cancer doesn’t wait. Join Team Jill now!

“This is a fight we can win, but it takes at team to tackle cancer, and we need your help,” says Chris Draft (of Team Draft & the Super Bowl Challenge).  Will you choose to stand up for your community?

Ottawa has a strong history of people standing up publicly to fundraise for lung cancer (many of whom are pictured above), but this is rare across Canada. I know of some and would love to hear of other efforts across Canada!

Stand up and support lung cancer research by supporting Team Jill now!

Thank you!

#ResearchMatters

Team Jill has chosen the Ottawa Regional Cancer Foundation as beneficiary for this year’s Super Bowl Challenge. 90% of funds raised will go to lung cancer clinical trials through the ORCF, provided we raise a minimum of $5000. USD.

The Super Bowl Challenge is a great opportunity to raise lung cancer funds and also potentially earn the experience of a lifetime, and speak about the importance of lung cancer on one gigantic international platform. Thank you, Team Draft and the NFL for this tremendous opportunity! Team Draft is an initiative of the Chris Draft Family Foundation dedicated to increasing lung cancer awareness and research funding; more information below. 

Team Draft’s Press Release:

For Immediate Release

December 3, 2019

Contact:  Randall Hawkins, rhawkins@chrisdraft.org

Team Draft Marks Giving Tuesday With A Call To Support Sixth Annual Lung Cancer Survivors’ Super Bowl Challenge

 (ATLANTA, GA) – Today is Giving Tuesday—a day designed to unleash the power of people to change their communities by supporting the organizations they care about.  On this Giving Tuesday, Team Draft is challenging people to help change the face of lung cancer by supporting its 6th Annual Lung Cancer Survivors’ Super Bowl Challenge.  This one-of-kind fund raising challenge gives lung cancer “survivor-advocates” the opportunity to compete to against each other to raise funds for critical public awareness of this often misunderstood disease and for cutting-edge research that is giving new hope to those battling it.  The top three fundraisers, announced on December 30, 2019, will earn trips to the Super Bowl in Miami, the Pro Bowl in Orlando, and the 29th Taste Of The NFL, an exclusive food and wine festival held in Miami the night before the big game where guests will savor dishes prepared by some of the top chefs in the country while rubbing shoulders with legendary players from all 32 NFL teams.

Team Draft was founded by former NFL linebacker and internationally-recognized health advocate Chris Draft and his late wife Keasha on November 27, 2011—their wedding day.  At the time, Keasha, a never-smoker, was battling Stage IV Lung Cancer after being diagnosed with the disease in December 2010.  Despite the diagnosis and knowing the long odds they faced, Chris and Keasha decided to fight back, and standing side-by-side, they launched Team Draft at their wedding.  Keasha died one month later.  

Since its founding, Team Draft has been dedicated to using its unique platform to raise lung cancer awareness and research funding through its Campaign To Change The Face Of Lung Cancer.  And the centerpiece of that Campaign is Team Draft’s annual Lung Cancer Survivors’ Super Bowl Challenge.  As Draft explains, “the Super Bowl Challenge gives us a unique opportunity to use the overwhelming media coverage surrounding the Super Bowl to raise lung cancer awareness on an international level.”

Team Draft’s efforts are paying off.  “The Challenge achieves some amazing things in terms of public awareness and changing perceptions about lung cancer,” says Dr. Ross Camidge, Director of Thoracic Oncology at Colorado University Cancer Center.

By giving survivor-advocates like Gina Hollenbeck, one of last year’s Challenge winners, a world-wide platform to share their stories, Team Draft is weaving a broader narrative about the true nature of lung cancer and the hope that now exists for survivors.  As Gina put it last year, “I am super excited about this opportunity to go to the Super Bowl with my husband, but I am even more excited to give lung cancer a voice”—a sentiment echoed by Jeff Meckstorth, another past winner.  “In many ways,” says Jeff, the Super Bowl Challenge is “a once and a lifetime opportunity to thank our community, fight for all lung cancer families, but most importantly to educate the public about the reality of lung cancer.”

In addition to raising critical public awareness, the Super Bowl Challenge also raises funds for lung cancer organizations and treatment centers across North America.  And because Team Draft’s National Campaign has always been about “we” and not “me,” just as Keasha intended, participating survivor-advocates who raise more than $5,000 during the Super Bowl Challenge may commit 90% of the funds they raise to a lung cancer organization or cancer center of their choice with the remaining 10% going to support Team Draft and its mission.  Of this aspect of the Super Bowl Challenge, Dr. Camidge says, “you need somebody working on the national level.  You need somebody working on the local level.  Everybody wins.”  

As Draft points out, “anybody can get lung cancer.”  “The disease doesn’t care where you live, but your zip code often determines the quality of care you receive,” he explains.  “In football, we understand the importance of the home field advantage.  By allowing survivors to direct where funds go, we’re giving people the opportunity to fight for better cancer treatment in their communities—to give themselves and their neighbors the home field advantage,” he says.  

But for the competing survivor-advocates, the Super Bowl Challenge is so much more than a fundraiser.  “Team Draft has really helped boost our family’s spirits during this challenging time,” says Dr. Lucy Kalanithi.  In 2015, Lucy and her husband, Dr. Paul Kalanithi, won Team Draft’s inaugural Super Bowl Challenge and were able to join Team Draft in Phoenix for Super Bowl 49.  Paul went on to write the bestselling memoir When Breath Becomes Air—a powerful and moving chronical of his life and lung cancer journey—before passing away at the age of 37.

While Team Draft hopes to have survivor-advocates from all 32 NFL cities participate in the Super Bowl Challenge, the ultimate goal is for all NCI designated cancer centers and lung cancer organizations—regardless of location—to identify and support a survivor-advocate in the Challenge every year.  “We know the key to winning this fight is for everybody in the lung cancer community to support one another,” says Draft, adding that “the only way a community or an organization loses is if nobody stands up.” 

On this #GivingTuesday, Team Draft is challenge everybody to make the choice to fight for their communities by joining the Campaign To Change The Face Of Lung Cancer by donating to the Chris Draft Family Foundation at www.chrisdraftfamilyfoundation.org or supporting a participating survivor-advocate in the Super Bowl Challenge at https://www.crowdrise.com/o/en/campaign/2020-lung-cancer-survivors-super-bowl-challenge.  

“This is a fight we can win, but it takes at team to tackle cancer, and we need your help,” Draft says.  Will you choose to stand up for your community?

About Team Draft

Team Draft is an initiative of the Chris Draft Family Foundation dedicated to increasing lung cancer awareness and research funding.  To learn more or to donate, visit www.teamdraft.org.

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Fundraising for lung cancer research in Canada.

When I sit back and reflect on 2019, it has been an amazing year. I’ve been able to meet so many new people, deepen relationships, and learn many things. The lung cancer community and advocacy work have both grown significantly. There are so many stories to tell and blog posts to write! 

When I look back, I clearly see growth in the numbers of lung cancer survivors who are stepping up and standing together to make a difference for others. This is largely due to the difference that new treatments make for us. Many of us benefit from targeted therapies, pills that we take daily which keep us alive and help us live fairly normal lives. Some benefit from immunotherapy, and the numbers of those who are doing well a year or more off treatment are increasing. Lung cancer research is making a difference. We rejoice and celebrate!

Anyone can get lung cancer. Increasing numbers of younger women are, and we have no idea why. We need more research to extend lives. More about this at the end of this post, and I plan to share some good news very soon.

The Ottawa support group is growing tremendously. The hope outreach tables that Andrea Redway organizes every month continue to make a real difference at the Cancer Centres. We have deepened relationships and built trust within The Ottawa Hospital, so that staff are excited about the tables and promoting them. Andrea, Kim MacIntosh and I gathered a team and entered race weekend as “Lung Cancer Team Canada”, raising money for Lung Cancer Canada (who sponsors our support group and provides patient handbooks to distribute), and showing that we are #LungCancerStrong! There are now two of us who serve as Patient Relations Advisors at The Ottawa Hospital, and I am slated to share my story there next month. I spoke at Grand Rounds with Dr. Terry Ng in June on biomarkers, a real honour and humbling experience. Another big highlight was our Second Annual Living with Lung Cancer Patient-Driven Summit in November, organized by Andrea, Dr. Paul Wheatley-Price, Jody Chaters and me, in partnership with The Ottawa Hospital, with support from LCC.

Across Canada, the most exciting highlight was the forming of a second lung cancer support group. Alyson is an advocate in Winnipeg who I’d been mentoring for some time, and she was doing great work. Wanting to grow the team, I kept looking for another lung cancer patient/survivor/caregiver in the city, who seemed interested in doing more. I found Christine’s wonderful blog and reached out to her. Together Alyson and Christine started connecting more with their lung cancer community, forming relationships with people at their cancer centre and looking for ways to serve their community. They wanted to start a support group. Our Ottawa Social Worker, Diane Manii, connected us with a social worker in Winnipeg, and the Winnipeg lung cancer support group started in the Spring! Group members stood up and applauded Christine and Alyson because they were so grateful they had started the group, which is flourishing!

Christine is in the middle with her husband, and Kim on the right.

I continue to serve as a patient research advocate, including as the patient representative for the Canadian Cancer Trials Group lung site. This Fall I served on the panel for the Canadian Cancer Society Team Survivorship Grants, and it was an interesting process, giving out $10 Million for cancer research. Sadly, none of it went to lung cancer research. I hope to learn why no lung cancer researchers applied for this grant money and work to drive change for the future.

The Canadian Cancer Survivors Network provided political advocacy opportunities at the local, provincial and national levels, and growing numbers of us took advantage. We are grateful for their ongoing commitment to and support of lung cancer survivors, and that they do very well at smoothing the pathways for us to be more easily involved in political advocacy.

It’s hard to say what my international highlight was for 2019, but I think it was participating as a mentor in the International Association for the Study of Lung Cancer (IASLC) inaugural STARS program for training patient research advocates. What an honour that Canada was chosen as one of only five teams, and both of us from The Ottawa Hospital! The six month process of mentoring Kim was enjoyable and rewarding. She has grown and flourished as an advocate. She is more knowledgeable and confident. She is finding her voice and using it in strategic ways. She spoke at our summit, has been tweeting effectively and growing relationships in Ottawa and beyond. It’s a joy to continue the mentoring relationship past the October endpoint of the program.

Part of the STARS program was held at the World Congress of Lung Cancer in Barcelona Spain in September. It was exciting to gather with so many people, all committed to conquering thoracic cancers worldwide! What a good gift to connect with advocates from around the world, united with shared passion. Some of us are exploring an international research project. I gave out many Canadian flag pins, generously supplied by MP Catherine McKenna, and also represented Canada by participating in a series of videos put out last month by Lung Cancer Europe (LUCE), which were filmed while we were in Barcelona.

It was great to gather so many Canadians at LUNGevity’s International Lung Cancer Survivorship Conference in Washington DC in April. LUNGevity shot video there which was made into a terrific video about clinical trials and released last month. It was an honour to be included. Through the generosity of a kind family, I was able to attend the ALK+ lung cancer conference in Atlanta in August, and while there I taught on Advocacy.

Social Worker Diane Manii and I presented about our Ottawa support group at the International Psychosocial Oncology Society Conference in Banff AB in September. I was surprised at how little was presented on lung cancer, but I learned a lot and met amazing people. Our presentation was very well received.

Participating in the American Association for Cancer Research’s Scientist <–> Survivor Program at their Annual Meeting in Atlanta in the Spring was a wonderful experience that opened doors. We learned volumes, met tremendous people, were greatly honoured as cancer advocates and came home changed. I am even more committed to lung cancer advocacy, and so very grateful.

I am also very grateful for Chris Draft who is a tremendous mentor to many in the lung cancer community, including me. Around the world, people speak highly of him and the difference he has made for them. He is making a real difference, supporting and encouraging us so that we can do more. His intentional engagement with a wide variety of people, and lengthy NFL experience result in a strong network with many connections who support his work in the lung cancer community. He is also a brilliant strategist who listens, thinks, and is not afraid to say what needs to be said. 

Advocacy is relational work, and requires candid conversations. One thing we often hear is that lung cancer is the deadliest cancer, yet receives very little funding for research. 

I’m a “glass is half full” kind of person who likes to focus on the positive and express a lot of gratitude. Effective advocacy requires an honest assessment of the problem. I’ll be honest with you: I’ve found it hard to speak or write publicly about one of the real problems with lung cancer research funding problems here in Canada.

If I may be open with you, for some time I’ve been aware that one of the big roadblocks to lung cancer research funding is a lack of invitations and obvious ways to donate. There aren’t foundations filled with people trying to raise money for lung cancer research. It’s rare to even find a link on a website to click on. Last year I asked the Ottawa Regional Cancer Foundation to put a link on their website to receive donations throughout Lung Cancer Awareness Month, and they did, which was wonderful, but it was only there for one month. Through my lung cancer journey, my experience is that it has generally been challenging to find a way to give specifically to lung cancer research.

It’s easy to donate to cancer in general, or to some other specific cancers, but the world’s biggest cancer killer? Very challenging here in Canada. This is a serious problem.

Lung cancer patients and advocates want more life-extending research (including clinical trials); researchers want more money. Lots of people care and are willing to give. I wonder how many have not yet given because no one asked them to give, or because they could not find a straightforward way to give.

If we want people to give to lung cancer research, we need to invite them, and also create clear pathways for them to give. 

I am passionate about this because research is extending the lives of so many people affected by lung cancer, and we need more research! We have been working behind the scenes to help open pathways for giving directly to lung cancer research here in Canada.

Research matters! More research means more survivors. Lung cancer research is cutting edge, exciting, life changing! We need to tell the stories and raise more funds for much needed research so that more people affected by lung cancer will be able to live better and longer.

Today is my six year cancer-versary. Look for exciting news about how we will celebrate!

#ResearchMatters #MoreResearchMoreSurvivors

STARS in Spain

The International Association for the Study of Lung Cancer (IASLC) has a new program for training patient research advocates, called STARS. The six-month training process began back in May when five Patient Research Advocates were chosen from around the world. It continues with webinars, calls and mentoring, culminates with the IASLC World Conference on Lung Cancer next week, and concludes with presentations in October.

The IASLC Supportive Training for Advocates on Research & Science (STARS) program aims to increase the number of Patient Research Advocates (PRAs) equipped to provide accurate scientific translation in their online or real-life lung cancer patient/caregiver groups and to provide the patient perspective for lung cancer research and policy.

More here.

I am very happy to report that Canada was chosen for one of the STARS positions. Our very own Kim MacIntosh, who lives in Cornwall Ontario and is part of our Ottawa Lung Cancer Support Group, is one of only five STARS worldwide! She has been learning more about lung cancer research and advocacy through webinars and conversations. Each one of the STARS is paired with a mentor for six months, and I’m delighted to be a mentor for Kim. We are both treated at The Ottawa Hospital.

Kim (with Chris Draft and me) at our #LungCancerStrong event in May 2019. Kim was a valuable planning team member who got the tee shirts printed and organized.

The IASLC World Conference on Lung Cancer (#WCLC19) is the world’s largest international gathering of clinicians, researchers and scientists in the field of lung cancer and thoracic oncology. This year it takes place September 7-10 in Barcelona. Kim and I will be there, representing Canada, along with Christine Wu who earned one of only five IASLC patient advocacy travel awards for her hard work in lung cancer advocacy. Among other achievements, Christine helped start the Winnipeg support group. I look forward to connecting with people, examining best practices and exploring partnerships that will best serve the Canadian community.

We know that representing Canada at #WCLC19 is a privilege and responsibility. We welcome questions, and will do our best to track down experts there to answer them. We will be sharing information about new lung cancer research with other lung cancer advocates who are leaders in their communities, and posting on YouTube, facebook, Twitter and Instagram. Please follow us and share the news about lung cancer research. It’s up to all of us to share about the exciting advances which are changing outcomes and extending lives.

Christine (above) and some Canadian survivor advocates & friends who have been to LUNGevity’s Hope Summit, Washington DC, 2019 and 2018 (below right)

I owe a debt of gratitude to many people and partners who helped prepare me for this mentoring role in the STARS program. I am especially grateful for the American Association for Cancer Research Scientist <–> Survivor Program, which I participated in last Spring at the Annual Meeting in Atlanta, #AACRSSP19. There cancer advocates were engaged, equipped, and honoured for their work. I am also very grateful for the ways I am learning through serving as Lung Site Patient Representative for the Canadian Cancer Trials Group, and the mentoring of International Lung Cancer Advocate Chris Draft.

Are you going to #WCLC19? Is your doctor? If you or anyone else you know is going, please be in touch and encourage her/him to connect with me. I’m looking forward to meeting more members of our lung cancer community!

What is happening at your local cancer centre for Lung Cancer Awareness Month (#LCAM)? At The Ottawa Hospital Cancer Centre, our team of survivors plus Ottawa Hospital people have already started planning our second annual survivor-driven Lung Cancer Summit, geared to the Ottawa community. This is a great opportunity to share exciting new research from the World Conference for Lung Cancer out into the community.

Dr. Paul Wheatley-Price is a stellar Ottawa Hospital oncologist, and President of Lung Cancer Canada. Andrea Redway (in the background with the white hat), is a great friend and Survivor Advocate. I am grateful for such dedicated teammates.

Cancer Centres plus advocates are a great combination! If we don’t tell people about exciting advances in lung cancer research, who will? It’s up to us to spread the news about the difference lung cancer research is making for survivors! #ResearchMatters #ResearchWorks

Please let me know what is happening in your community.

Jody of The Ottawa Hospital is awesome! She works hard to make her administrative endeavours appear effortless. She is a great support and encourager!