Not even a migraine…

No, not even a migraine could stop me, last December, from submitting my application to the American Association for Cancer Research (AACR) Annual Meeting Scientist – Survivor Program, which takes place March 30 – April 3, 2019, in Atlanta Georgia! #AACR19 #AACRSSP19

This program intentionally connects scientists with cancer survivors during this big, exciting international cancer research meeting. It may be difficult for some of you to understand why I would be so terribly keen to go, but trust me! I really, really wanted to go and be part of this amazing opportunity to connect with people, learn things and tell my community about them!

The AACR’s website says their Annual Meeting’s program, “covers the latest discoveries across the spectrum of cancer research … and highlights the work of the best minds in research and medicine from institutions all over the world.”

I’d been trying to work on my application, as the days raced towards the December deadline. Busy days, Lung Cancer Awareness Month activities, end-of-year extra’s, concerts, wrapping up details from the November “Living with Lung Cancer: Ottawa’s 1st Patient-Driven Mini Summit”, kids’ activities, special Christmas events, family travel, etc.

Suddenly I was down to the wire with thoughts swirling in my head, so fast I couldn’t write them down. I had answered most of the questions, only a couple left plus the BIG ONE: an abstract for a scientific type of poster that I would actually make and present if I was accepted into the program. (No pressure!)

What made it worse was that my hands weren’t working well. Nerve pain is a side effect of the new drug I’m on. Writing or typing can be very painful.

A dear friend helped by sitting at a coffee shop with me the evening of the deadline, jotting down my words on paper, helping me to compile my myriad of lung cancer ideas and thoughts into one clear concise “sort-of-scientific-sounding” abstract. When it was time to go home I still didn’t have it, and my headache was growing worse. I started to feel terribly sick …

I’m not going to tell you how physically awful I felt that night as I struggled at the computer to get the words together and inputted to the computer so I could submit my application. But I did it!

And here it is, all official, at this link, or you can read it below.

I am so happy to say that I am incredibly honoured to have been accepted into the program! A lot of people didn’t make it. Only 40 of us did.

As I go to this amazing conference, I’m representing those who weren’t accepted and those who didn’t apply. That’s a big responsibility, and I intend to share the things I will learn with as many people as I can.

You’ll be hearing more in days to come, but for now, I’ve got to go work on that poster! 😀

ADV06 / 6 – Informed, inspired, empowered: The new era of lung cancer patients/survivors in Ottawa, Canada

 March 31, 2019, 1:00 PM – 5:00 PM Section 29

Presenter/Authors

Jill Hamer-Wilson. Independent Advocate, Ottawa, ON, Canada

Abstract

This poster will discuss many aspects of Living with Lung Cancer. Jill Hamer Wilson’s mission is to raise up a team of lung cancer advocates whose voice cannot be denied and who will influence for change. Caring until there is a Cure through more research will equal more survivors. Initiatives include monthly support meetings for lung cancer patients, regular online support and communication, monthly outreach tables in the cancer centres, annual lung cancer patient summits, regular encouragement, inspiration and spreading of hope which goes beyond ourselves, beyond lung cancer, which breaks down walls that divide us. Constituencies include local lung cancer patients, and focus locally, but also reach to all affected by any kind of cancer, anywhere in the world. Ottawa’s 1st Patient-Driven Mini Summit took place on November 27, 2018. It provided a terrific stimulus to provoke discussion and networking with peers and leaders of interest. The psoter will also explore the experiences of lung cancer patients at the Ottawa Hospita; the journey from scarcity to abundance and the under resourcing to forming a community of hope and providing of resources for others. Examples of collaboration, such as speaking on panels about bench to bedside research and care, clinical trials, and fundraisers will be outlined along with learning and growth opportunities for lung cancer patients/advocates.

AACR Annual Meeting 
Home Page

Super Fun!

Well, that was the most excitement I’ve had in a long time! I can’t believe I almost won (i.e. almost came top three) the Super Bowl Challenge! Thanks to you, for a while there I was even in SECOND PLACE!!!! I’m getting excited again, just thinking about it!

Thank you for your tremendous support, encouragement, and generous donations! Together we raised a lot of money for lung cancer research and lung cancer survivor support. Together we raised a lot of excitement and encouragement for this lung cancer survivor too! Thank you!

One of the ways you increased my joy was by inviting your friends and family to participate as well. You told people my story, you widened the circle, you grew the team, and that was terrific! It takes a real team effort to compete in the Super Bowl Challenge! Thank you to all of you who are Team Jill, all year long. I can’t thank you enough!

Screen shot taken from https://www.crowdrise.com/o/en/campaign/2019superbowlchallenge

These top three will do a fantastic job representing all of us lung cancer survivors: Patty at Super Bowl 53 in Atlanta GA, Jeff & Rhonda at 2019 NFL Pro Bowl in Orlando, FL, and Gina at Taste of the NFL in Atlanta GA. They will have opportunities to share their stories with key influencers, and they will have a LOT of fun!

Grand total raised so far is: $32,594 USD, and Patty is holding another big event on January 19th. This is something to celebrate! I’m still hoping to make it to Atlanta, maybe even before Summer – watch this space!

Lung Cancer Advocate (and former NFL player) Chris Draft visiting our family

Chris Draft works with tremendous energy and tenacity to encourage and support the lung cancer community. Team Draft is Changing the Face of Lung Cancer, focusing on Awareness, Early Detection, Treatment, Research and Survivorship. Chris genuinely cares about people, thinks strategically and acts to make a significant difference. Plus, he knows football and enjoys taking people affected by lung cancer out to games, Survivor at Every Stadium.

www.TeamDraft.org – that’s Chris at the upper right

Thank you!! I had a lot of fun participating in the Super Bowl Challenge this year! That was one exciting ride! Thank you for your generosity.

The Inappropriate Ask

Celebrating 5 years since my lung cancer diagnosis

Truth is, no one really knows how hard it’s been, these last five years. I don’t like to talk about the hard times. That’s part of my coping strategy. I focus on what’s good, what’s beautiful, what’s true.

When I was first diagnosed, I woke up several times in the night. Chemotherapy or cancer side effects, and perhaps the stress of it all. I would look out the window and note the position of the moon and stars in the sky. Knowing they were still there, still moving as they had been prior to diagnosis, somehow helped, and I would go back to bed, back to sleep.

My faith in God has made a huge difference. I am grateful for the love God has shown me, and given me for other people. Any good you see in me is due to the difference Jesus makes in my life. I don’t talk about my faith much publicly, but I’m always happy to. Ask me about Jesus anytime!

It took a whole huge group of people to help keep me alive five years past diagnosis. I don’t know who they all are: researchers, doctors, scientists, statisticians, fundraisers, donors, nurses, administrators, number crunchers, cleaners, clerks, managers … I don’t even know all the categories of people to list, but I wish I could thank every one of them.

Getting me to five years has definitely been a group effort! During the hard times, even the smallest kindness or encouragement can make a big difference. Even a kind word or a greeting called out across the street! Many of you may not know what a significant difference you’ve made for me. Thank you.

While I was writing my blog yesterday evening, a group of amazing friends came carolling and gift-bearing to our door, in honour of my five year “cancer-versary”. This five year journey has been one of unexpected kindnesses, unexpected grace. I could never write them all down.

So many of you have made a difference for me, for my family these past five years. I am hurting my brain trying to come up with a framework which would help me to include and express all the many kindnesses we have received, tremendously moving and generous gifts which have helped us make it through the terribly difficult times over the past five years.

I simply can’t do it. I can’t list all the people. I can’t even categorize the types of gifts you’ve given us. Not even with the broadest of brush strokes or the vaguest of generalities. There is no way this human can find to thank all you wonderful people in one single blog post. 

I can say that each of you, even with the smallest of kindnesses, each of you who have helped us travel through this valley, have made a significant difference. You, perhaps, may have no idea. Thank you.

Thank you for showing love to this person affected by lung cancer. Thank you for showing love and kindness to my husband and children, also affected by lung cancer.

Not everyone has people like you.

Thank you for making a difference in our lives.

Lung cancer friends at Evening of Hope Lung Cancer Fundraising Gala November 2018

Could I ask just one more thing?

Help me win the Super Bowl Challenge! Whoever raises the most money for lung cancer research gets to go, and it’s not just about watching the game. If I win, I will tell my story to influential people who are in a position to help make a difference for people affected by lung cancer. Plus watch the Super Bowl … in Atlanta … in the Winter!

I would LOVE to win! Please help me!

Please click this link and help me win


https://www.crowdrise.com/o/en/campaign/jill-hw-love-songs-for-lungs

… Was that inappropriate?

Here are just a few special moments of lung cancer work over the past couple of years…

Please click this link and help me win!


https://www.crowdrise.com/o/en/campaign/jill-hw-love-songs-for-lungs

(Was that inappropriate?)  Thank you!