Finally, an update!

Being a cancer patient is not for the faint of heart! I’m just home from another routine CT scan. I get them every three months. The scans may be routine, but my reactions are not! Sometimes I feel stressed. Sometimes I’m relaxed. Often I’m in a pretty good mood and have enjoyable conversations with people I encounter at the hospital.

This time, I felt unusual stress in the lead-up. I don’t know why and I don’t think there has to be a reason. It’s very common for cancer patients to face “scanxiety”.

Maybe I’ve been thinking too much about this time last year: I was feeling great, went for my CT scan and was blindsided by the results which led to a change of meds. The new meds seem to be working well, and have far fewer side effects. I have no reason to suspect there will be bad news from this scan.

But still the lingering stress trudged through every day. I prayed and asked my Bible study group to pray too. That made a real difference, but even so I occasionally noted the undercurrent of stress ready to ripple through my (mostly) peaceful heart.

In the hours leading up to my scan I felt fine. Joyous even. On my way into the hospital I was thinking of a friend – a lovely person who works at the hospital and just got a big promotion. I was hoping for the opportunity to congratulate her in person, and prayed that I would run into her along the corridor by the coffee shop. There she was, right where I prayed I would see her, and it was wonderful to give her a hug and hearty congratulations!

I found myself praying for other folks in the waiting areas and happily chit-chatting with hospital staff. All was going well until I heard the CT machine from the next room saying, “breathe”. The strangest thing happened: a chill went up my spine and for that moment I was filled with dread about the procedure. I prayed and felt calm again, but that was a tough moment, and this scan wasn’t an easy one. The nurse couldn’t start the IV on the first go. He fished around and still couldn’t find the vein. (Ouch!) I prayed it would go better on the second arm, and it did. The technician was joking about a bunch of things and we were laughing together, but then suddenly he started talking about the changes to our city in recent years and the dramatic increase in gun violence. This is a subject close to my heart, and it’s hard to hear this as I’m lying on the machine about to have a test. There were a few other things that also made it hard to keep calm and relaxed.

But while I was waiting in the observation area afterwards, I became aware that other patients were having a much harder time than I was. The nurse had an even worse time finding a vein in the woman after me. She sounded extremely stressed. The man after her was worried about having a reaction to the dye, since that had happened to him before. CT scans are not for the faint of heart.

I’m thankful I made it through fairly well. Now I just have to wait for the results from my oncologist!

IMG_2995Thank you for standing with us! It has now been a little over four years since my diagnosis, and we give thanks that my health is so good!

There is so much I’d love to tell you about! I know there was a longer-than-usual gap between posts, and I’m sorry if you felt any anxiety about that. I was very sick and tired out through November and December and even part of January. I’m so thankful to be getting my energy back! Here are a few quick updates.

My Lung Cancer and Jelly Beans video has had over 700 views, and many of you have made donations toward lung cancer research. Thank you very much!

 

Here it is if you want to see it again: (pardon the look on my face at the beginning!)

I’ve recently done some fundraising to help me get to the LUNGevity Hope Summit this April. I just learned today that I have raised the full $1500. Thank you to all who have given! Your gifts are both encouraging and helpful!

A large group of us are raising money to fund research into the specific kind of cancer we have: ALK+. Together, our whole team has raised about $300,000. (I think!) We surpassed my own personal fundraising goal of $500., and I’m wondering if I set my goal too low. If you would like to make a contribution towards research into my specific kind of cancer, you can still give here: Jill’s ALK+ Lung Cancer Research Fundraiser. (This is to an American charity, so receipts will only help those who pay US taxes.)

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Our pilot project for the Ottawa Lung Cancer Support Group is completed. It has been a tremendous success! This group of women connected well and we have really enjoyed spending time together. In fact, I invited them over to my home last week! Our leader is a real gift to us, and her skills and experience make a significant difference in the quality of the group. We have shared some ideas and soon the decision will be made about how to move forward to support more lung cancer patients. We are very grateful for the generous support of Lung Cancer Canada and The Ottawa Regional Cancer Foundation. If you know someone diagnosed with lung cancer in the Ottawa area, and you’d like to learn more, please be in touch – either with Lung Cancer Canada or with me.

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One in thirteen Canadians will be diagnosed with Lung Cancer

I’ve participated in a few other (lung cancer) events and there are a couple of more in the pipeline. I’ll try to keep you updated better in months to come!

Thank you again for standing with us. We can’t tell you what a difference that makes!

 

 

Update from the middle of the night

From my last post:  “… But I want that chemo to kill more of the cancer … and I need to get in to see my oncologist before they will schedule me for more. I was feeling a bit frustrated that the long week-end delayed my regularly scheduled Tuesday chemo date, and now I’m chomping at the bit to get back on track! (… and desperately trying to not succumb to the control-freak part of my nature!)”   Note: I was initially expecting to start my fourth cycle of chemo on February 18th, but I’m still waiting.

Here’s a question I’m pondering in the middle of the night here: Does lying awake in bed developing strategic plans for advocating for myself to get a chemo appointment *necessarily* define me as a control-freak?

I left multiple messages with the phone systems in both my oncologist’s office and chemotherapy booking on Monday, then again on Tuesday, and I’m feeling frustrated that no one has returned any of my calls.  Not even a “Sorry you got the wrong number,” reply or, “We’re really busy but we’re working on it because we know this is important to you,” or, “We’ve got your messages, and if you’d please stop calling we’d have time to actually book you an appointment!”  Nothing. So when I woke up with my mind racing, I eventually decided to come downstairs in the middle of the night and leave more messages. Sometimes action helps. If I don’t hear back by 9:30 am, I plan to go in person to the chemo scheduling office and see if I can talk to an actual person. If that doesn’t work, we plan to contact some of the people we know who can help us navigate the system.

Sometimes action helps, but my mind is still racing. Those of you who think I’m so full of faith, remember this moment! There’s a great verse in Philippians (4:6,7) which is much easier to memorize than to consistently live: Do not worry about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus. I was praying on Monday and I felt peace. I was praying on Tuesday and I felt peace. Here and now, in the middle of the night, my mind is racing and although I’m trying to pray, I’m not really feeling the peace!

Time for a new strategic planning session! Warm milk. A couple of Psalms. Asking God to help schedule the chemo (again), find things to be thankful for as I ask. I go to the cupboard for a mug, and the one right in front is a gift from a former student leader who was visiting town this summer. It reads, “Faith is not knowing what the future holds but knowing who holds the future”. (Insert thankful smilie emoticon here!)  I’m now sipping from it – good plan! Now I’ve read Psalm 34 (one of my many favourites)  I will bless the LORD at all times; his praise shall continually be in my mouth.  … I sought the LORD, and he answered me, and delivered me from all my fears.  … good Psalm, good plan. As I read it, I could feel my fear and stress starting to melt and my world getting a bit bigger. There may possibly be more in the universe than my next chemo. I’m sorry for my narrow-minded control-freaking focus on that one thing. I thank God for many of the kindnesses of family, friends, acquaintances and strangers, and I thank Him for many of his good gifts to us. This is helping. This is helping me to remember what is true and real. “…though we stumble, we shall not fall headlong, for the LORD holds us by the hand.” (Psalm 37:24) I thank God that I had peace and trust earlier that He was is ultimately in charge of my chemo schedule and would will take care of me. I go back and edit that last sentence, thanking God again! I edit again to, “… and you are taking care of me.”  Psalm 38:9 & 22 read, “O Lord, all my longing is known to you; my sighing is not hidden from you.  Make haste to help me, O Lord, my salvation.”  Psalm 40:17 says, “As for me, I am poor and needy, but the Lord takes thought for me. You are my help and my deliverer; do not delay, O my God.”  I keep reading, and so many verses jump off the pages at me. I should not be surprised that this happens: it has happened so many times before. I am thankful. Not fully filled with peace, but I think I’ll keep reading and praying and sipping … my “cup” doesn’t feel like it’s overflowing yet, but the peace is growing, my mind is slowing down, and I think it’s nearly time to brush my teeth and head back to bed …

… and if I don’t hear back by 9:30 9:00 am, I plan to go in person to the chemotherapy booking office at the hospital and try to talk with an actual person!

Beautiful delivery Tues. afternoon!