Lung Cancer Screening Matters!

The International Association for the Study of Lung Cancer holds the World Conference on Lung Cancer every year. This beautiful picture was taken at WCLC19 in Barcelona. COVID has not stopped lung cancer research, but due to COVID-19 WCLC20 has been happening this month, virtually rather than in Singapore. I’m going to briefly summarize two key presentations below. (After I tell you about these amazing smiling people below)

#WCLC19 Barcelona

I love looking at these amazing advocates from several continents, gathered in Barcelona in September 2019 to learn and celebrate research. We know that research means life, and lung cancer research is extending many of our lives. Many of us are now taking treatments that did not exist when we were diagnosed. Some of us are holding onto hope for new research to come up with an effective new treatment to help keep us alive before our current treatment stops working.

At the time of that photo, nine of us were on treatment (later stage diagnosis), two diagnosed early stage (had curative treatment), three never diagnosed, and all fourteen fierce lung cancer advocates. I’m grateful that though some of us have gone through very bumpy paths, all are still alive. How happy we are that we were well enough to travel to Barcelona and be physically present together with top researchers in the world, learning the newest potentially life-extending news!

For people affected by lung cancer, research often means the difference between life and death. For those of us who know many people affected by lung cancer, losing people we care about is far too common. Most of us are diagnosed at a later stage with a very poor prognosis. If more people were diagnosed at an earlier stage, way more would live much longer.

Let me get to a quick summary of the research!

First, experts are saying we can double lung cancer survival in four years! Sounds great, and it’s not complicated. We need to educate doctors and implement lung cancer screening programs. Here’s the beginning of the article from IASLC Lung Cancer News. You can read the whole thing at this link: https://www.iaslc.org/iaslc-news/ilcn/improved-screening-uptake-could-help-double-lung-cancer-survival-2025, but the basic summary is that more doctors need to know that lung cancer screening works.

Lung cancer screening works, and more doctors need to know it.

When we test people using low-dose CT scans, way more will be cured. Lung cancer screening has the power to shift the stage when the majority of people tend to be diagnosed from late stage to early stage, which makes a huge difference for survival. In very broad strokes, when we don’t screen, about 3/4 of the people will be diagnosed later stage (with very poor prognosis). When we screen, about 3/4 of the people who are diagnosed will be early stage with a very good chance of living long and not dying of lung cancer.

Lung cancer screening makes sense!

Second, a new study from Taiwan (“TALENT”) shows the importance of lung cancer screening for ALL high risk individuals. Most screening is done for people with a long history of heavy smoking. These researchers from Taiwan did lung cancer screening for people who had never smoked but were at high risk from other things like family history or cooking without ventilation. They found lung cancer in a larger percentage of people than is typically found in a screening study with heavy smokers. This “TALENT” study found lung cancer earlier and people will live much longer because of that.

If you’re interested, you can read the article here: https://www.iaslc.org/iaslc-news/ilcn/lung-cancer-screening-never-smokers-east-asia-catches-very-early-stage-disease.

Screenshot of my Tweet

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Lung cancer screening matters for all people at high risk, not just smokers. Anyone can get lung cancer.

Anyone. People who eat broccoli and blueberries. Triathletes, daughters, sons, sisters, brothers, moms, dads, friends. Lawyers, nurses, teachers, receptionists, reporters, pharmaceutical reps, professors, personal trainers, doctors, administrators, health educators, financial experts, engineers, ministers, vice principals, social workers, writers, rocket scientists…

Maybe even you, dear reader.

I definitely don’t want anyone to get lung cancer, but if you’re going to be diagnosed, an early stage diagnosis is a way better diagnosis than a later one.

Lung cancer screening can mean the difference between late or early stage, a poor prognosis or a cure.

Early detection matters! Let’s catch it early!

Lung Cancer Screening matters – for all people at high risk!

Tell your doctor. Tell a politician. Get a white ribbon and tell the world.

Let’s act now!

Awesome Ottawa lung cancer survivor advocates Andrea Redway (lawyer), Kim MacIntosh (nurse) and me.
All diagnosed later stage, all very grateful for life-extending lung cancer research.

How did it go?

“How did it go?” I can’t tell you how many times I’ve been asked that question the past few days!

I travelled to Toronto last week to meet with MPPs at Queen’s Park, to share my story with the hope that …

Four of us are lung cancer patients/survivors

… and that’s the real issue. What was I hoping for? Well, you know how I feel about funding lung cancer research. Lung cancer causes 27% of cancer deaths in Canada but research only gets 7 cents for each cancer dollar. That’s not fair! I hope for lung cancer research to be fair!

Last week, though, we weren’t asking for research dollars.

On Wednesday morning, Canadian Cancer Survivors Network and Lung Cancer Canada hosted a #Right2Survive Breakfast, with quite a good turnout. Thank you to all of you who contacted your Ontario MPP. Many good conversations were had, and several people spoke from the podium. I took pictures whenever I remembered to, and a professional photographer was present. One of the MPPs told me her people were always telling her to take more pictures and tweet more. I finally had time to tweet during the train trip home! (I’m @JillHW – please follow me if you’re not already!)

I think my cards were an effective way to get across the main point from my story – that lung cancer research makes a real difference for families like ours (and is worth funding) – very powerfully and quickly. Access to innovative new treatments has extended my life! Everyone I gave my card to looked at it, and I think the message hit home.

MPP Robin Martin

I listened as MPPs shared personal stories of losing loved ones to lung cancer. Some of the people in the room were clearly already committed to the cause. Others seemed very interested and open to further conversations and deeper commitments. I was grateful for everyone’s presence there and spoke with as many as I was able. Many good conversations were happening around the room!

One speaker noted that lung cancer kills over 20,000 Canadians every year, the size of a small city every year!

Our three main messages for the day were: screening programs (save lives, time and money), lung cancer patients deserve timely and affordable access to innovative treatments, and patient voices must be heard!

After breakfast, several of us observed Question Period in the Legislature. What an interesting experience! (My first time.) For those who may not know, our provincial government has recently introduced a new plan for families with an autistic child or children. They claim it will help more families, but it works out to less funding per family. Families have been protesting, and that day quite a large number were in the gallery. One after another, members of the opposition introduced families and described their situation and how the funding changes would negatively affect them. It was very sad, very hard to listen to, but it reinforced to me the importance of telling our stories. Clearly the Opposition together had determined this was the best strategy to sway the Government, and I can tell you that it was powerful.

Fellow advocates and CCSN

After Question Period, quite a few meetings were scheduled with MPPs. I wasn’t very nervous about meeting with MPP John Fraser, because I had sat beside him at the pre-election town hall meeting at which I spoke last Spring, and he was very encouraging. This time he expressed interest in our messages and appreciation that I had traveled all the way to meet him there in his Toronto office rather than in Ottawa. He honoured me by listening intently and saying how important my story is. My fellow advocates had many similar experiences in their meetings.

MPP John Fraser and LCC’s Christina Sit

So, how did it go? To be honest, I’m not sure. I plan to ask the organizers what they think, once they’ve had time to process it. They’re the experts. I’m just a voice of lung cancer, telling my story, representing countless others, and trying to do that well.

I hope that it makes a difference – even the smallest difference. That’s what I hope for.

Grace