A few thoughts about faith, hope, love and lungs

I don’t often write about faith or my personal life in this blog. This post is a little different, a glimpse into my inner life. Whether you choose to read further is naturally up to you.

I’m a follower of Jesus and my identity as a follower of Jesus is what inspires my actions and attitudes. The faith community has played a significant role in my life over decades and I am very grateful to connect with, be prayed for and supported in many ways by many different individuals, groups and congregations. It has also been one of my life’s deep joys to speak to so many individuals, groups and congregations.

Being a follower of Jesus was an intentional decision when I was 17 years old, and following Jesus is intentional every day since then. This is what motivates my life, and gives me love for people. This is what motivates my advocacy and what gives me love for people affected by lung cancer. When I say love, I don’t mean a soft and squishy feeling. I mean deliberately working hard for the good of people affected by lung cancer and other kinds of cancer. This is also where my hope comes from. This is what has kept me going all these years, through many difficulties, many hard times. Being a lung cancer advocate has been challenging. I have almost stopped many times. Much encouragement from Chris Draft and a number of other people has helped keep me going, as did a strong sense of calling. Advocacy is what I strongly believe I’m meant to do in this season of life. I have seized this opportunity and I keep seizing this opportunity, looking to live as best as I can given the circumstances, controlling what I can control. Saying yes. Thank you, God.

Below is a hymn that has been very meaningful to me for decades. My parents were both diagnosed with cancer when I was 20 years old, and died within a year, and that was when I first heard this hymn. I was introduced to it by opening up a used hymnal that I had just bought to a “random” page. I was planning to sit at the piano to play and sing some hymns, and the first time I opened it was to that hymn. The hymn captured me and spoke deeply to me right from the first moments I saw it, played and sang it. It was especially significant that year. It helped keep me going.

My Ottawa church, Parkdale United Church, sang this same hymn at the Maundy Thursday evening service this week. One of the ministers is planning to come over to anoint me with oil and pray for healing again this week. So grateful. I had a very significant talk and prayer time with another one of the ministers the other day, who has been praying for me and others affected by cancer for years. She is a strong supporter, a game-changer. She strengthens the soul. I’m very grateful for the pastors and members of this congregation who have supported us and kept us fed both physically and spiritually for years.

We’re strongly supported, and not just by Parkdale. So many of you have told me you’re praying, your team is praying, your church is praying. Thank you. I just got a lovely card and letter from someone from another Ottawa church the other day. Words cannot express our appreciation. I know I’m alive because God is merciful, because God hears and answers prayer. God gives skill to researchers, compassion to clinicians, wisdom and insight all around. God gives love. So very grateful.

The lung cancer community needs more love. I am working hard to pour more love into this community.

O Love That Will Not Let Me Go (Public Domain)

O Love, that wilt not let me go, I rest my weary soul in Thee;
I give Thee back the life I owe, That in Thine ocean depths its flow May richer, fuller be.

O Light, that followest all my way, I yield my flickering torch to Thee; My heart restores its borrowed ray, That in Thy sunshine’s blaze its day May brighter, fairer be.

O Joy, that seekest me through pain, I cannot close my heart to Thee;
I trace the rainbow through the rain, And feel the promise is not vain That morn shall tearless be

O Cross, that liftest up my head, I dare not ask to fly from Thee;
I lay in dust life’s glory dead, And from the ground there blossoms red Life that shall endless be.

#hope

Share my dream!

Last night I had a dream

Enormous football arenas were overpacked with wildly cheering fans. The commentators were all familiar to me. Multiple cities across North America and around the world were showcasing similar events. Each was being telecast live, and I could see multiple large screens with views of the action around the world. Our view kept switching from location to location because there were so many action-packed venues. The energy in the arena was like nothing I’d ever experienced. The sound was deafening. The air electric. The crowds were cheering enthusiastically as lung cancer researchers made advances.

Lung cancer researchers? Yes, researching right on the field, and the commentators all were lung cancer advocates/activists/fundraisers, and I was one too, in my own arena. And we were doing the play-by-play, telling the crowds at home what was happening on the field. There were all kinds of half-time type shows, and great celebration and pageantry. Cheers would erupt as we would learn of advances in other stadiums. We were celebrating wildly!

And Chris Draft* would show up in one city after another, wild cheering breaking out whenever people saw him in their own city or on screen at a remote location. He would spend time with the commentators and with the crowds, and everyone would celebrate! He’d encourage everyone and the cheers would erupt and then he pop over to his next venue, and it would happen all over again.

Every arena, all around the world, enthusiastically cheering on lung cancer research! Advances being made in treatments and all manner of discoveries!

That is a dream worth having! An even better dream is for lung cancer to be cured!

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Chris Draft of the Draft Family Foundation: Inspiring Advocate!

* Chris Draft is a former NFL linebacker. This month, he and Keasha Rutledge Draft would have celebrated their seventh anniversary. She died of lung cancer. Chris tenaciously continues the legacy they both started. He is a tremendous lung cancer advocate, strategist and mentor. He is a hero to many of us in the lung cancer community. I am grateful to him for supporting and encouraging me, and teaching me so much! He has come to Ottawa several times, and phones regularly.

Chris started the Super Bowl Challenge, where lung cancer survivors compete to raise money for lung cancer research. Whoever raises the most gets a free trip to the Super Bowl. The second and third prizes are pretty good too!

I entered because I really want to go to the Super Bowl, but more than that, I want to raise money for lung cancer research. This is something I’m obviously passionate about!

I’ve met many wonderful people with lung cancer. Interesting, funny, generous, thoughtful, smart, caring people. People who are very much loved by their family, their friends. People who have made a tremendous difference in their communities and elsewhere in the world.

I love these people and I can’t tell you how much I want better outcomes for them, for us!

With 1 in 12 people getting it, you probably love someone with lung cancer too.

Please, help me raise money for lung cancer research! Would you give, and ask your friends and family to give as well?

Our family and friends are singing our lungs out for lung cancer research this month! We’re doing a song a day and posting them on YouTube. We call it “Love Songs for Lungs”, and we’re raising hope, awareness and funds for lung cancer research. We’re having a lot of fun doing it! If you haven’t seen us yet, check us out! And if you like what we’re doing, please “like” our songs and tell your friends, because that will help too!

Here’s the link to support lung cancer research, the good work of Chris Draft, and maybe even help me win a trip to the Super Bowl:

https://www.crowdrise.com/o/en/campaign/jill-hw-love-songs-for-lungs

And if you haven’t seen our songs yet … please check them out! Today will be #19, a classic love song done in a new way with a friend I’ve known since elementary school.

Here’s my YouTube channel: https://www.youtube.com/channel/UCe_-U2z2imwrQpKikpisxgQ/videos

Thank you.

Ottawa Lung Cancer Support Group Oct 2018 Cecilia Kim Jill Mariel Andrea Peggy Laurie Jan taken by Diane

Our beautiful Ottawa lung cancer group. (you may recognize Andrea (front left) from a “Love Songs for Lungs” video!)

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Love Songs for Lungs

Lung cancer doesn’t get much recognition. I’ve never been to a run for lung cancer, not even a walk. How many people know what colour the ribbon is for lung cancer, or that November is Lung Cancer Awareness Month?

Lung cancer is seldom talked about, even though it’s by far the deadliest cancer, killing more people every year than breast, prostate and colo-rectal (the next three deadliest cancers) combined.

Lung cancer doesn’t get a lot of love. Nor does it get much funding! In fact, lung cancer receives less than 0.1% of cancer donations from individuals and companies. That’s right: 99.9% of all cancer donations from people like you and me go to other cancers.

Lung cancer turned my life upside-down. It turned my family’s life upside-down. In the years since my diagnosis, I’ve met so many amazing people whose lives have been turned upside-down by lung cancer. Beautiful, amazing people. Too many lives cut short by this deadly killer.

And we know that research extends lives. We’ve seen it in my own life! Lung cancer patients are gathering together and funding research to try to extend our own lives!

We could use some help! Lung cancer patients could use some more support! Lung cancer research desperately needs more funding.

So this month our family is doing something crazy to try to raise funds for lung cancer research. We’re not fundraisers, so we’re starting with what we’ve got and trying to turn it into a fundraiser!

My musician-husband Jono and I are posting a love song on YouTube every day for the month of November in honour of Lung Cancer Awareness Month!  We’re calling it “Love Songs for Lungs“! It’s relaxed, minimally rehearsed, done ideally in one take in the living room, and so far it’s pretty fun! #30in30 #Hope

It’s especially meaningful for me because I love to sing, but lung cancer took my voice away. It’s only in recent months that I’m starting to find it again. It’s still not what it was, but I’m so thankful to be singing! You’re invited to celebrate with me!

Check us out! …and if you like what you see, or you want to encourage us, please share with your community and make a donation to lung cancer research.

I still haven’t figured out the fundraising part of this. I’m thinking about maybe starting a crowdfunding page (like gofundme) or something. I’m working on it and I’m definitely open to suggestions!

For a start, here are some links you could make donations to:

ALK+ Research (Patient-driven research into our own particular kind of lung cancer.)

Super Bowl Challenge (Funds go to support lung cancer survivors like me and research… and if I raise a LOT of $$, then I might even get to go to the Super Bowl!!!)

Thank you very much!  (For Lung Cancer Awareness Month 2017, I made a Jelly Bean video.)

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