Love Songs for Lungs

Lung cancer doesn’t get much recognition. I’ve never been to a run for lung cancer, not even a walk. How many people know what colour the ribbon is for lung cancer, or that November is Lung Cancer Awareness Month?

Lung cancer is seldom talked about, even though it’s by far the deadliest cancer, killing more people every year than breast, prostate and colo-rectal (the next three deadliest cancers) combined.

Lung cancer doesn’t get a lot of love. Nor does it get much funding! In fact, lung cancer receives less than 0.1% of cancer donations from individuals and companies. That’s right: 99.9% of all cancer donations from people like you and me go to other cancers.

Lung cancer turned my life upside-down. It turned my family’s life upside-down. In the years since my diagnosis, I’ve met so many amazing people whose lives have been turned upside-down by lung cancer. Beautiful, amazing people. Too many lives cut short by this deadly killer.

And we know that research extends lives. We’ve seen it in my own life! Lung cancer patients are gathering together and funding research to try to extend our own lives!

We could use some help! Lung cancer patients could use some more support! Lung cancer research desperately needs more funding.

So this month our family is doing something crazy to try to raise funds for lung cancer research. We’re not fundraisers, so we’re starting with what we’ve got and trying to turn it into a fundraiser!

My musician-husband Jono and I are posting a love song on YouTube every day for the month of November in honour of Lung Cancer Awareness Month!  We’re calling it “Love Songs for Lungs“! It’s relaxed, minimally rehearsed, done ideally in one take in the living room, and so far it’s pretty fun! #30in30 #Hope

It’s especially meaningful for me because I love to sing, but lung cancer took my voice away. It’s only in recent months that I’m starting to find it again. It’s still not what it was, but I’m so thankful to be singing! You’re invited to celebrate with me!

Check us out! …and if you like what you see, or you want to encourage us, please share with your community and make a donation to lung cancer research.

I still haven’t figured out the fundraising part of this. I’m thinking about maybe starting a crowdfunding page (like gofundme) or something. I’m working on it and I’m definitely open to suggestions!

For a start, here are some links you could make donations to:

ALK+ Research (Patient-driven research into our own particular kind of lung cancer.)

Super Bowl Challenge (Funds go to support lung cancer survivors like me and research… and if I raise a LOT of $$, then I might even get to go to the Super Bowl!!!)

Thank you very much!  (For Lung Cancer Awareness Month 2017, I made a Jelly Bean video.)

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Back to Where it all Began

I can’t tell you how excited I was to give a speech at my daughter’s elementary school’s Terry Fox Day Celebration! Honoured, excited and unusually nervous … partly because I don’t normally speak to the Grade 1-6 set, and that kept me up late the night before, reflecting on my story.

My cancer story started at the very same time as my little girl started going to that Elementary School. I was active and healthy, with no idea that I could possibly get lung cancer. We were happy and excited about life. I had a cough after a cold at the beginning of the school year. My daughter was in grade one. The cough didn’t go away. Eventually we learned that it was lung cancer.

I was very sick and it really affected our family. I coughed all the time, and couldn’t even bend over to pick something up. We needed a lot of help with meals and cleaning and other things. There were a couple of times I even thought I was going to die.

I’m a lot better now, in fact you would never guess I had lung cancer just by looking at me. I think it’s a miracle I’m alive, and I’m incredibly thankful for innovations in cancer treatment that mean I can take pills at home every day and live a somewhat normal life.

I did not expect, didn’t even imagine there would be cancer research breakthroughs in time for me! I cannot begin to perceive all the steps that had to be in place for treatments to be available to keep me alive today. I am thankful for all of the people, every single member of that huge team, all those special someones who have made a difference, changed our story, helped to bring about life-extending innovations in the lung cancer world.

I know Terry Fox transformed the cancer universe for many of us! I’m grateful for Terry Fox, for all the runners and researchers, dreamers, donors and doctors – everyone involved in the relay race that has lead to me standing in my daughter’s Elementary school gym on Terry Fox Day 2018.

This experience was extra emotional for me too, because this wasn’t only my daughter’s elementary school: it was also my own elementary school, where I went as a little girl, walked the halls, played in the yard, laughed with friends, learned all about fractions, performed in my school play, and at piano recitals. It was also the school where I did a practicum when I was a student teacher. So many memories!

I got pretty choked up when they showed the video about Terry Fox before I spoke. Terry Fox is a hero to me. He was long before my cancer diagnosis, and even more so now.

I managed to wipe the tears from my face before the lights went back on, and told the group the good and age-appropriate part of my story, making sure they understood the connections between their Terry Fox run, the importance of cancer research, and the difference that they were making for cancer patients and our families.

When you run, you raise money

so that scientists can do cancer research

and invent medicines

that doctors can give to cancer patients like me.

THANK YOU!

Today you are making a difference for cancer patients and our families! I’m so grateful that I get to be here and say “Thank You!”

But the teacher in me didn’t stop there: I also gave them a little lesson on getting through the tough times in life.

HOLD ONTO HOPE! Be like Terry Fox: DON’T give up! There is always reason to hope!

ASK FOR HELP! friends, family, teacher… find your team of encouragers, even if only one or two others (Terry Fox didn’t do it alone: he had a lot of help, including his brother and a friend in the van!)

HELP OTHERS TO HOPE (Sometimes that can help us hope too!)

. ..  …   ….   .. . ..   ….   …  .. .

I received lots of positive feedback after my speech, but as I walked home I couldn’t help but think of a few of the significant things I didn’t say to those beautiful children, the teachers, the VP, the parent-volunteers …

The statistics are heart-breaking: 1 out of every 12 of them will be diagnosed with lung cancer – that’s about 2 kids from each class – all the more gut-wrenching because it’s the deadliest cancer by far.

Lung cancer research is grotesquely underfunded.

We need a lot more research, and the time is now!

I can’t bear to think of those sweet children, grown up and enjoying life with a happy family, their a precious little daughter or son in grade one, then devastated by a diagnosis of incurable lung cancer!  I want a cure!

 

Marathon Weekend

Like many weekends for most of us, this past weekend was a marathon for our family … but what made it different was that my husband actually ran the marathon, and the kids and I volunteered at it!

Jono has run a few marathons before, but this time he ran to raise funds for the Ottawa Regional Cancer Foundation. Thanks to the generosity of a cheering crowd of supporters, not only did he run a personal best 3:25:29 but he also raised $1725 (so far)! We are happy with his achievements, and so glad that he is recovering well from the run.

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No pressure, but if you want to give, there’s still time: http://ottawacancer.kintera.org/ottawaraceweekend/jono

Speaking of recovery, at the end of each race is the “recovery” area where volunteers give food and drink to the runners. The kids and I volunteered there on Sunday, setting up and handing out yogurt, chocolate milk and bananas. It was a privilege to be part of the team who served 47,000 runners this weekend. So many of the runners expressed gratitude for the volunteers who served in a variety of ways. We were there for about 4 hours, and I am thrilled to report that I was able to complete my shift! I was exhausted afterwards and very stiff, but I also recovered well from my volunteering “marathon”.

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A quick photo with our friend who coordinates volunteers and generously welcomed us to her team. (My daughter was the youngest there.)

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Calm before the storm! It was a privilege to be part of the team who served 47,000 runners this weekend with a smile! Very well organized effort!

The past few months I’ve been deliberately pushing myself harder and harder to try to increase my endurance. Life is a marathon! I’m noticing my stamina has improved and also my ability to bounce back after exerting myself. I’m still not well enough to take on a job, but if this trend continues, I’m very hopeful!

Also on the weekend the kids and I put on a lemonade stand fundraiser for the Cancer Foundation. We surpassed our fundraising goal and raised $225.25! Thank you to all who encouraged our kids and donated!

We’ve been fundraising because I have the energy to, and because we are grateful for the ways the Cancer Foundation has helped our family and many others, through clinical trials, workshops, coaching, classes, etc. I have recommended their cancer coaching to two people this week alone!  The Ottawa Regional Cancer Foundation supports people who have been diagnosed with cancer and their families and friends. For more information: http://www.ottawacancer.ca

Now it’s time for a break from fundraising, time to focus on the next chapter, the next segment of our race. I don’t know what’s next, but I’m looking forward to it!

How’s your marathon going? Is it time to take a break from something? Time to dive into a new challenge? Time to keep on keeping on in some rough terrain? Are you running a good race? Looking forward to what’s coming next? I hope you are, and I hope you are surrounded by teammates who cheer for you and support you!

Thank you for cheering us on in our marathon … we all do better with encouragement and support, don’t we!