Lung cancer is hard, but if you’re open you can meet some outstanding people that you wouldn’t have otherwise. There is grief, to be sure, but it is paired with the good gift and honour of knowing amazing people, the graceful swans or “silver linings of lung cancer”. So grateful! Research is helping more of us live longer. Please donate so more awesome people can live longer!
An encouraging email from a dear friend this morning reminded me that if you don’t follow me on facebook, you may not know how grateful I am for your generous flow of donations which filled my LUNGevity Summit Survivor Challenge account all the way to the top and even a little bit over! I am excited to be going to LUNGevity Foundation’s International Lung Cancer Survivorship Conference in Washington, DC, April 26-28!! THANK YOU!!!
I am grateful to be blessed in so many ways, and one of the biggest gifts is my community, my circle of friends who hold me with such love. Thank you for being part of that community. I have no words for how grateful I am for you.
Yesterday my husband bumped into a teacher from back in our eldest’s elementary school days. She told him she follows this blog and prays for me every night. When he told me, I got a little teary with gratitude. I can’t tell you how many times people have said they read this blog and think of me and/or pray for me regularly. Thank you! You are making a difference!
You help me have hope! Thank you!
As my dear friend said in her email, I have opportunity to share amazing hope… here in Ottawa, in Atlanta the end of this month, at the LUNGevity conference in April, and who knows where else! Thank you for the ways you help me open up the doors!
LUNGevity’s summits have made a huge difference for me. I’ve deeply connected with my lung cancer family, my silver linings. I’ve learned about new research, and my hope has grown tremendously.
Being at this conference has been incredibly inspiring, and I would love to go again this year. I want to be there to represent Canada, and be a supportive presence for all who are there. I also want to get a booster shot of hope and bring back news of exciting research and great stories to share with Canadians (and others) affected by lung cancer. I know I’d come back a better advocate.
If I can raise $1500 or more in donations, LUNGevity will cover my travel expenses, including airfare and hotel accommodations.
Many of you were so generous for the Super Bowl Challenge, and I’m thankful! I wouldn’t want anyone to feel pressure, but if you’re able to help me get to this year’s summit, I’d be grateful.
Here’s the link:Jill’s LUNGevity Summit Fundraising Page
Deadline is March 15!
LUNGevity earned a 4-star rating (the highest rating) from Charity Navigator again this year. You can read more about that here.
Two of my Ottawa lung cancer sisters are coming to the summit this year, maybe more! Others are coming from elsewhere in Canada. It would be strategic, and so good to spend time with them!
LUNGevity’s summits have been getting growing numbers of people affected by lung cancer from around the world, so this year it’s “The International Lung Cancer Survivorship Conference”. I’m going to represent Canada and I look forward to spending time there with some of the Canadian lung cancer advocates that I try to encourage regularly.
Proceeds from this fundraiser will benefit LUNGevity Foundation, the leading private provider of research funding for lung cancer. LUNGevity Foundation is firmly committed to making an immediate impact on increasing quality of life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as providing community, support, and education for all those affected by the disease.
I find it weird how few details I remember from what was such a momentous day in my life.
It was a Thursday in December in Ottawa. So, I imagine that it was probably cold and pretty bleak. There must have been lots of people heading to work, and many others on their way to confront mall crowds to pick up the latest hot toy or special gift to put under the Christmas tree.
I had probably woken up at the usual time, helped my sons get off to school and my daughter, who was in Grade 1, to her bus stop.
But the truth is that I don’t really remember.
It was just another routine day — until it wasn’t.
Until it became my personal nightmare.
And my family’s nightmare.
And the day that changed my life.
It was the day that I met with doctors to get the results from a bunch of tests that followed my complaint about a cough that wouldn’t go away.
At least I thought it was a cough. And wished that it had been a cough.
Instead, it was lung cancer.
Many people who get horrible news like that say that they remember so many unusual and often irrelevant details, similar to the war vet or the witness to history: the odd pattern on the doctor’s tie or maybe the light bulb in the waiting room that needed to be changed.
Not me. I remember pretty well nothing. I don’t remember what I was wearing or the weather or anything about what I ate.
About the only thing that I remember was the part where my doctor uttered the bottom line: “Jill, you’ve got lung cancer. We cannot cure you.”
There were lots of other words, I’m sure. Stuff details about my diagnosis and the lack of options and the horrific prognosis.
But after hearing the bottom line, the rest of it didn’t seem to matter much. Maybe that’s why I remember almost none of it. After hearing those words, my world just went into a dizzying blur. It was like I had entered some alternate universe that had completely different physical properties to the one that I was used to.
Maybe I had been dropped into an episode of the Twilight Zone.
It must have been something weird like that because the doctors said “lung cancer” and I remember thinking that that made no sense.
That’s a smokers’ disease and I’ve never smoked.
That’s a type of cancer that I associated with older men. And i’m a mom with three young kids.
Like most Canadians, I didn’t know very much about lung cancer.
That’s no longer true.
Yes, it’s true that many lung cancers are caused by smoking. But we could remove all of the lung cancer deaths in Canada that strike smokers or former smokers and lung cancer would still kill just as many people each year as breast cancer. To say that another way: As many non-smokers die of lung cancer as women die of breast cancer.
Lung cancer is also the leading cause of cancer deaths world-wide and is responsible for about 30 per cent of all cancer deaths in Canada. That’s even more than the deaths caused by the next three biggest cancer killers combined.
I don’t want to diminish breast cancer or any other type of cancer, or those smokers who contracted lung cancer. All cancers are horrible and all cancer victims have friends and loved ones and lives that they want to continue.
I want to point out what to me is painfully obvious and a gross injustice. This hellish disease that attacked my body and has placed me and my family under extreme stress for more than four years has a problem. Or, at least the battle against the disease has a problem.
It’s a PR problem.
People don’t seem to have as much sympathy for its victims as they do for other cancer victims, even though one in 12 Canadians will at some point in their lives get lung cancer.
One in 12!
Yet, despite that staggering number and the fact that lung cancer is responsible for about 30 per cent of all the cancer deaths, this disease gets about 7 per cent of cancer funding.
How does that make sense?
And that’s not just the opinion of a lung cancer victim. According to the experts at McGill’s Rosalind and Morris Goodman Cancer Research Centre (GCRC), there are two factors behind the lack of research: first, the stigma around lung cancer. As I mentioned, this disease has a PR problem.
And two, the grim survival rates. Only 17 per cent of lung cancer victims are alive five years after being diagnosed. It’s the deadliest form of cancer, which, in a very odd way, contributes to the PR problem because it means that there isn’t a very big pool of advocates to speak out about the need for more research.
I’m doing everything I can to remain one of those advocates – and a wife, friend and mother — for as long as possible.
I’m well aware that the fight against this disease needs people like me. I’m also very aware that I’m only here today because of new forms of treatment, which comes from research, which comes from generous donations.
Seventeen months after my diagnosis, I was weakening, running out of treatment options. Honestly, I thought my lung cancer was getting the best of me.
But a clinical trial at the Ottawa Hospital gave me a shred of hope and a life line. It extended my life by about two years. During that time, new treatments became available. That meant another life line and another one after that.
It’s now been more than four years since my diagnosis. I’m still here. I’m still a wife and a mom and a person who loves music and my friends and who gets lots of joy from my life.
That’s all thanks to God and to research and to generous donors.
I thank all donors from the bottom of my heart for that and ask that we each do whatever we can to beat this horrible disease. We need another life line. I need it and so do countless others.
Cancer affects all of us and we can and must win this battle.
I’m betting my life on it.
It’s easy to help save a life. You can fund lung cancer clinical trials by designating “Lung Cancer” on the drop down menu (pictured above with the blue highlight). Please give generously at the link below, or to other specific lung cancer research charities. (I provided two others in my previous post.)
Donations made to this designation will go to Lung Cancer clinical trials. Thank you to the Ottawa Regional Cancer Foundation for honouring my request for that designation. November is Lung Cancer Awareness Month, but you can give every month of the year!
You may have heard me say that hope is an act of defiance. You may have heard me mention a conspiracy of hope… I’m happy to report a growing crowd of co-conspirators!
It’s taken me a while to tell this story. That’s because I can’t figure out how to tell it. I can’t do it justice, can’t even come close.
August 1st 2018 was unlike any other August 1st I can remember. It started small and kept on growing.
I spent weeks getting ready for it! I painted “Hope” rocks,
and more hope rocks,
and more hope rocks …
I bought chocolates, ordered supplies, connected with a variety of folks, including key people at the Ottawa Hospital Cancer Centre and Lung Cancer Canada …
I organized a lung cancer awareness table staffed by lung cancer patients at the Cancer Centre. It really wasn’t that big a deal! But it was, after all, WORLD Lung Cancer Day!
And it was, to my knowledge, the first time such a thing had ever been done!
I wanted to make a difference, brighten people’s day at the Cancer Centre, inject a little hope, raise some awareness about lung cancer … hence the hope rocks and chocolates and information. But what ended up happening was so much more!
We enjoyed a beautiful collaboration among a number of different groups and individuals who all want the same thing: to help and support lung cancer patients.
We didn’t count the number of people we had conversations with, but there were many! There were always at least two of us staffing the table, usually three and sometimes more! It seemed there was a constant flow of people who stopped by wanting to talk. I couldn’t estimate the number!
Here’s the thing: I was blown away by the difference we made! I can’t find words to describe the impact that we seemed to have on people. You could see shock and bewilderment on the faces of people when they first stopped by the table … especially when they found out we were there because of lung cancer. Many could not grasp that most of us were actual lung cancer patients / survivors. We looked so healthy …
Lung Cancer is the deadliest of all the cancers. We know that far too well. But that doesn’t mean we can’t enjoy each other’s company! 🙂 We cry together and we laugh together, and on August 1 it was a tremendous privilege to gather with some of my lung cancer sister-friends and bring joy and hope to the cancer centre! I don’t have words to describe how much it meant to me to be bringing hope to the cancer centre together!
A conspiracy of hope! (In a place that can be so difficult to walk into.)
Here’s an excerpt of a letter I wrote to thank the team:
Thank you so much for your support yesterday! It was such a gift for us to be able to connect with lung cancer patients, other cancer patients, caregivers, staff, volunteers and friends! I loved the looks on faces when they learned we are LC patients/survivors! I’m confident we made a significant difference for many people yesterday.
It was significant for me too! Last year I painted hope rocks and brought them to the cancer centre all by myself. While I am glad I did that, and think it was a good thing to do, this year was so much better because I was doing it with you! Better because it made a bigger impact, and better because I got to do it with you!
I’m honoured to have served the Cancer Centre with you in celebration of World Lung Cancer Day 2018.
With love and appreciation –
But there’s even more!
Two of my dear (non-lung cancer) friends came and surprised me! They made and brought a huge, lungs-shaped cake to the Cancer Centre for us to share. What unexpected joy! They blessed us so we could in turn bless others even more! No words for how much this means to me! 🙂
A conspiracy of hope surprise party?
Here’s the best part, the icing on the cake: because we’ve got strong co-conspirators and teamwork, we’re going to keep these events going, raising hope and awareness about lung cancer. Monthly awareness tables, in ongoing partnership with Lung Cancer Canada and the Ottawa Hospital Cancer Centre, organized by my dear friend and co-conspirator, who is alive and making a difference thanks (in part) to excellent medical care and lung cancer research!
Hope could benefit from a whole lot more co-conspirators!
(Apologies: I don’t know who to credit for all of the photos. Most of them are from Mieke. Thanks again Mieke!)
I spent eleven hours at and near Parliament Hill on Tuesday, listening, learning and speaking. My first time serving as a lung cancer advocate in this particular setting, I was honoured to meet and have good conversations with MP Celina Caesar-Chavannes, MP Peter Kent, and MP Kate Young. It was a privilege to represent lung cancer patients, tell my story, and raise important issues. It was also a treat to make new connections, deepen ties with good groups like Canadian Cancer Survivor Network and Lung Cancer Canada, and spend time with dear friends who are passionate about this important cause. I was excited to be present at Question Period and see inside Centre Block again before renovations begin. A full day devoted to lung cancer issues: a day well invested! Now a couple of days of rest!
With thanks to John Major for the beautiful photo’s above, and CCSN and 3Sixty Public Affairs for organizing this strategic day.
I’m so grateful that I could join about 200 Lung Cancer survivors and 170 caregivers at LUNGevity’s Hope Summit in Washington DC the end of April!
I arrived to cherry blossoms on Thursday afternoon and enjoyed a quick view of some of the monuments and museums from the Circulator Bus. I spent time in the National Museum of African American History & Culture. I’m grateful for the few hours I got to play tourist, the many steps I walked (about three times my usual), and the healthy food I was able to buy from a grocery store. I went to my room early and slept well in preparation for the packed schedule the next three days!
Friday was a special Advocates day, then a welcome reception to kick off the week-end. We listened to speakers, met amazing new friends and reconnected with dear folks who feel like family!
So much exciting new research! So much joy and love, tears and hugs. So much hope!
I came home refreshed and renewed, encouraged and energized! I came home with inspiration, instruction and ideas! I came home with deep gratitude for the people who make this Hope Summit what it is: organizers, speakers, participants, and generous supporters like many of you!
Thank you for helping me go! Thank you! Thank you! Thank you!