Port update and today’s advocacy highlights

Several people have asked how things are going with the port, so it seems good to tell you that it’s going well! I’ve had chemo through it twice now, and having it changed the whole flavour of the chemo appointment. Instead of wondering with some measure of dread how many pokes would be required before success, each time the nurse had success on the first poke. Such relief! No more heating of the arms, no more slapping or pressing in search of sneaky veins. Both times the nurse simply inserted the needle into the port and all was well. Such relief!

Full disclosure: it hurts a little when the needle (for chemo) goes in. But so much less than when the nurse has to poke around for the vein. There are several pain relief options which could be used. Also, the phlebotomists at the Cancer Centre lab need to poke for blood draws for the blood test that we do every 24-48 hours before treatment, since they are not authorized to use the port. Blood draws don’t tend to hurt, and usually work on the first attempt.

Advocacy highlights: Great day today! Two significant conversations this morning to tell you about: one with someone diagnosed with lung cancer looking for support. She is interested in doing some advocacy also. The other with another person diagnosed with lung cancer who has set up a meeting for us with her MP to attempt to move access to Lorlatinib further forward. We spoke this morning to discuss strategy and make specific plans for this upcoming zoom meeting. I really appreciate being teammates with people who care and who appreciate the value of being part of a good team. Advocacy and life go better with good teammates.

Of course there were many more things on the agenda for today, but those are two being highlighted for today. Those and also this lovely card which just arrived from Martina, another good teammate and fellow cancer research patient representative good teammate. What a treat to receive such a thoughtful gift from a good teammate! #blessed #grateful #team

4 thoughts on “Port update and today’s advocacy highlights

  1. Jill – you continue to be an inspiration…..prayers continue and bless you for all you do for others through your advocacy work…..in spite of all that you are going through yourself…..you encourage others.

    Marcia

  2. How are things going for you know ? Hope much better . I have a port also but mine is on my arm between elbow & shoulder top . Inconvenient for showers as it is hard to keep it dry . This lung c sure has its challenges . Take care Cecilia

    Sent from my iPad

    >

  3. Hi Jill, I’m so glad the port was successfully installed and is making the chemo admin easier for you. You are an inspiration as you continue to see the positive and to encourage all of us. Take care and be well. Bev

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