Scanxiety is real… the anxiety many of us can feel around scan time. Most who’ve been diagnosed with lung cancer are on treatment, whether it’s a targeted therapy in pill form, chemotherapy, immunotherapy, or a new kind of therapy devised by researchers to keep us living longer and better. Whether alone or in combination, most are on treatment and get regularly scheduled scans to see if the treatment is working.
Sometimes some get cues that the cancer may be growing or shrinking, side effects that may be indicators, that might give an idea of what is happening inside our body. Often it’s a mystery. Lung cancer can be sneaky.
My 13th round of chemo was on Thursday August 12. I also continue to take a daily targeted therapy, Lorlatinib. This combination has growing popularity with some of the top lung cancer doctors in the US. I’m thankful to be able to have access to both treatments here. Lorlatinib is very effective at keeping the cancer from spreading to the brain. My CT scan was Monday morning (the 23rd), and results just came in: all is stable or slightly better! Such great news when someone gets good scans!
In the past few months, Several dear friends have gone through progression and questions about what kind of treatment path to take forward. Some have faced serious health challenges. These can be scary times. So grateful every time there is good news. We keep holding onto hope for more research to bring more treatment options which will help further extend life. Often there is uncertainty, and it can look like the research may not be keeping up with the need. And then there’s the issue of access: what about people who cannot use a treatment because they can’t get it? Maybe it’s too expensive or not available where they live or when they need it?
Lorlatinib is a drug that has helped keep me alive and living very well for years. I’m very grateful for it and have been working with others for some time to get better access to Lorlatinib for more Canadians. I’m thankful for the compassionate release program from Pfizer which has meant that every month a package of life-extending medicine, probably worth over $10,000/month, is delivered to the door at no charge. This morning, a cheery FedEx employee handed over the small box with a lovely greeting. He had no idea how thankful I am for that delivery.
Very grateful to continue to receive free Lorlatinib and that scans are good. Very thankful for researchers, clinical trials opening space, terrific care teams, dedicated advocates, and hope. It’s so important to hold onto hope.
(Apologies for the older photo’s. My phone is not currently working.)
Thank you for this beautiful message, Jill. It sounds like you’re doing great! Is this targeted medication for MET exon 19 skipping?
Great to get a current update Jill and so glad that Lorlatinib is working for you and that you have free access to it. PTL!!!
So delighted for you Jill🙏🏾 Mom just had her fourth and final chemo And will continue on Immunotherapy every three weeks for up to two years I understand? She was unable to do the drug trial as there were issues with her kidneys… But in a sense I’m grateful for that as she doesn’t cope well with all the appointments she currently has, so more appointments would not haves suited her… God bless you Jen xo
You are a beautiful writer, Jill! I’m so happy that you received good news about your scans!
Wonderful news Jill – I am thanking God for your treatment and health.
Thanks for the update Jill! So happy you’re scan went well.
Hi Jill – I’m so happy to hear your results. You’re a true tailblazer and such an awesome source of wisdom. I have a family member who will be having radiation at the base of her tongue, and I remembered your experience with the speech pathologist. Looks like I’ll be making some soup!!! Take care and again, happy to hear your scan results. xoxo, Shannon
Hi Jill: So thankful Lorlatinib is doing it’s job well for you with the added chemo. We’re grateful for all you do for lung cancer patients while also battling this illness yourself. Take care and may God keep blessing you with good scan results!