Lung Cancer Screening Matters!

The International Association for the Study of Lung Cancer holds the World Conference on Lung Cancer every year. This beautiful picture was taken at WCLC19 in Barcelona. COVID has not stopped lung cancer research, but due to COVID-19 WCLC20 has been happening this month, virtually rather than in Singapore. I’m going to briefly summarize two key presentations below. (After I tell you about these amazing smiling people below)

#WCLC19 Barcelona

I love looking at these amazing advocates from several continents, gathered in Barcelona in September 2019 to learn and celebrate research. We know that research means life, and lung cancer research is extending many of our lives. Many of us are now taking treatments that did not exist when we were diagnosed. Some of us are holding onto hope for new research to come up with an effective new treatment to help keep us alive before our current treatment stops working.

At the time of that photo, nine of us were on treatment (later stage diagnosis), two diagnosed early stage (had curative treatment), three never diagnosed, and all fourteen fierce lung cancer advocates. I’m grateful that though some of us have gone through very bumpy paths, all are still alive. How happy we are that we were well enough to travel to Barcelona and be physically present together with top researchers in the world, learning the newest potentially life-extending news!

For people affected by lung cancer, research often means the difference between life and death. For those of us who know many people affected by lung cancer, losing people we care about is far too common. Most of us are diagnosed at a later stage with a very poor prognosis. If more people were diagnosed at an earlier stage, way more would live much longer.

Let me get to a quick summary of the research!

First, experts are saying we can double lung cancer survival in four years! Sounds great, and it’s not complicated. We need to educate doctors and implement lung cancer screening programs. Here’s the beginning of the article from IASLC Lung Cancer News. You can read the whole thing at this link: https://www.iaslc.org/iaslc-news/ilcn/improved-screening-uptake-could-help-double-lung-cancer-survival-2025, but the basic summary is that more doctors need to know that lung cancer screening works.

Lung cancer screening works, and more doctors need to know it.

When we test people using low-dose CT scans, way more will be cured. Lung cancer screening has the power to shift the stage when the majority of people tend to be diagnosed from late stage to early stage, which makes a huge difference for survival. In very broad strokes, when we don’t screen, about 3/4 of the people will be diagnosed later stage (with very poor prognosis). When we screen, about 3/4 of the people who are diagnosed will be early stage with a very good chance of living long and not dying of lung cancer.

Lung cancer screening makes sense!

Second, a new study from Taiwan (“TALENT”) shows the importance of lung cancer screening for ALL high risk individuals. Most screening is done for people with a long history of heavy smoking. These researchers from Taiwan did lung cancer screening for people who had never smoked but were at high risk from other things like family history or cooking without ventilation. They found lung cancer in a larger percentage of people than is typically found in a screening study with heavy smokers. This “TALENT” study found lung cancer earlier and people will live much longer because of that.

If you’re interested, you can read the article here: https://www.iaslc.org/iaslc-news/ilcn/lung-cancer-screening-never-smokers-east-asia-catches-very-early-stage-disease.

Screenshot of my Tweet

~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~

Lung cancer screening matters for all people at high risk, not just smokers. Anyone can get lung cancer.

Anyone. People who eat broccoli and blueberries. Triathletes, daughters, sons, sisters, brothers, moms, dads, friends. Lawyers, nurses, teachers, receptionists, reporters, pharmaceutical reps, professors, personal trainers, doctors, administrators, health educators, financial experts, engineers, ministers, vice principals, social workers, writers, rocket scientists…

Maybe even you, dear reader.

I definitely don’t want anyone to get lung cancer, but if you’re going to be diagnosed, an early stage diagnosis is a way better diagnosis than a later one.

Lung cancer screening can mean the difference between late or early stage, a poor prognosis or a cure.

Early detection matters! Let’s catch it early!

Lung Cancer Screening matters – for all people at high risk!

Tell your doctor. Tell a politician. Get a white ribbon and tell the world.

Let’s act now!

Awesome Ottawa lung cancer survivor advocates Andrea Redway (lawyer), Kim MacIntosh (nurse) and me.
All diagnosed later stage, all very grateful for life-extending lung cancer research.

Health and Advocacy Update

First the good news: I haven’t had a scan yet, but based on my perception, the chemo seems to be working! I’m breathing better, coughing less and swallowing a little better. Good news! So very grateful for another extension on life!

I had my third round of chemo on Monday January 11, and brought in one of the amazing white ribbons that Heidi and Pierre Onda from Colorado have been generously making and sending out with love to whoever asks for one. This is an inclusive, unbranded campaign to raise lung cancer awareness, and it goes by the hashtag #TheWhiteRibbonProject. It has a growing presence on social media and at cancer centers across North America.

This exciting campaign is growing, and here’s a video (generously made by Katie Brown of LUNGevity) which gives you a small taste of the number of lung cancer advocates, oncologists, researchers and others who have keenly participated. If you look closely, you may recognise awesome Eastern Ontario advocate Kim MacIntosh near the end, and me with the chemo receptionist at The Ottawa Hospital. That first video got stuffed full of photo’s, so Katie started a second one, and then a third one for Canada, and she keeps adding photo’s as we send them to her! Everyone is welcome to participate!

There I go again: I was supposed to be giving you a health update but got distracted by some of the amazing advocacy work that is going on!

Healthwise, so far I have had several really rough days each three week cycle. I spoke with a nurse to get insight on how to better manage the symptoms. I’ll plan and prepare, and this will help me better cope next cycle. I’ll also keep managing my mindset. I’m grateful for Chris Draft who calls and encourages. He is a tremendous advocacy trainer, and offers helpful wisdom like, “We control what we can control”. He is a strong supporter of so many health advocates worldwide, and we are grateful.

Exciting news: my barium swallow study is scheduled for this afternoon (i.e. Tuesday the 19th)! Ordered back in November, I’m very hopeful that this will answer questions about what is happening when I swallow, and give us good information to help me avoid getting aspiration pneumonia again. I also hope to be able to eat more kinds of foods! I have eaten a LOT of soup since the summer!

I’m back from the hospital, and the study went well. I felt a little nervous beforehand, but very relaxed this afternoon and grateful for the support from my support team of friends and also The Ottawa Hospital team. Emilie, the Speech-Language Pathologist was very kind and knowledgeable. She got me to sample a variety of textures of food and drink with barium added in, then the x-ray machine tracked what happened inside. I didn’t choke on anything. We gained new information which informed us about which further tests need to be ordered. I’m being referred to more specialists, and that support is very welcome. I feel privileged to live so close and be connected to the tremendous resources at The Ottawa Hospital.

Here is my amazing Speech-Language Therapist who ran the test. She was eager to take a picture in support of lung cancer awareness, and very supportive of this person affected by lung cancer. I’m very grateful for our big lung cancer team!

Emilie, The Ottawa Hospital Speech-Language Pathologist